My moms update:
Neither arm will lift. My left hand that I have been relying on wants to quit. Gravity is not my friend. Every step I take feels like an overwhelming burden to this body as if I am carrying an extra 500 pounds of weight tied to my ankles and wrists. When I lay down in my bed at night I become a prisoner. It feels like
the weight of an elephant is sitting on my chest pinning both my body and limbs down leaving me unable to move or rollover without assistance. It is attacking my neck and throat. I have all the signs that my voice to might soon go. I can feel it's tightening grip on my lungs too! Pain has filled my body head to toe. I rely on others for everything. Insurance continues to deny the doctors request for home health care, nurses aide and much-needed medical equipment. But the one thing I will never ask "could it possibly be worse" because I know for a fact that it could be! What a difference a year has made. Never take for granted the simple things. Give thanks for your good health because without it life could be a living hell!
. ...................
Why is there nothing available for these people who are suffering.... Maybe if we could get 30,000 more people diagnosed with this at once, there might be more assistance.
what the MDA has offered to help with they are either are out of supplies or we are still waiting...waiting going on months of waiting.
My mom has also been denied all assistance with her insurance.
HOW IS THIS OKAY???
I am going to stop here,
before I let me frustrations turn into words.
Not pretty
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